Reports 2003

| Ref no |
2003/1 |
| Title |
Developing a responsive critical care service |
| Author |
Maureen COOMBS, Consultant Nurse Critical Care, Southampton University Hospital
Trust |
| Abstract |
This travel scholarship
was driven by the need to re-shape health care roles within the clinical
speciality of critical care. Learning about alternative division of labour
profiles from international colleagues could result in quality service
improvements.
Three American critical
care units were identified to act as primary clinical sites. Contact with
specific acute care trusts, and discussions with the Modernisation Agency
provided a United Kingdom perspective for this award. The outcomes of this
study tour provide a comparative evaluation of models for critical care team
working in the United States of America and the UK. In addition, clinical
skills required to fulfil such workforce redesign and educational programmes
required to support such role development, are described. |
| Ref no |
2003/2 |
| Title |
Study
visit to explore nurse-led models of care in the USA and the implications for
older people’s services |
| Author |
Aileen
FRASER, Practice Nurse, Gloucester Road Medical Centre, Bristol |
| Abstract |
This report describes a
visit to the Health Action Model for Partnership in the Community (HAMPIC),
South Dakota; the Rainbow Prism model in North Carolina, and the Evercare
project in Colorado. All of these projects are nurse-led models of care.
HAMPIC and the Rainbow Prism projects are nursing-theory-based models and have
been developed to address the health needs of people who are disconnected from
mainstream health services through social, cultural or economic disadvantage.
The nursing theory on which these projects are based is Parse’s Theory of Human
Becoming (HBT). This articulates the nursing relationship and aims to improve
quality of life for the people served. The outcomes examined are the effect of
theory on practice for nurses and patients; how the philosophy underpinning
the model is demonstrated in practice; and how evaluation is carried out. |
| Ref no |
2003/3 |
| Title |
An
Exploration of Models of Care for patients co-infected with Tuberculosis (TB)
and Human Immunodeficiency Virus (HIV) in Mumbai and Kerala, India |
| Author |
John
QUIRK, Clinical Nurse Specialist – HIV/AIDS & Sexual Health Woking NHS Primary
Care Trust and Surrey Health NHS Primary Care Trust |
| Abstract |
Epidemiologists are
aware of the potential for an increase in HIV infected people coming to the UK
from the Indian sub-continent. Many of these people will develop Tuberculosis
(TB) as an AIDS defining illness. The rationale in visiting the Indian city
of Mumbai and the State of Kerala was to examine the models of care available
to HIV/TB co-infected patients in resource poor settings, one urban and the
other rural. The scholar was keen to ascertain what potential effect the
HIV/TB epidemics would have on the public health system of the UK considering
the close links between India and Britain. The models examined involve a wide
range of Government, Private and Non-Governmental Organisations dealing with
the complex and challenging needs of a growing number of people with HIV/AIDS |
| Ref no |
2003/4 |
| Title |
The
Interface of the Muslim Community and community palliative care services. |
| Author |
Kathrine M SHAW, District Nurse, Rotherham Priority Health NHS Trust |
| Abstract |
The aim of this study
was to explore how community palliative care services may be developed to meet
the unique needs of the local Muslim Community. The opportunity to undertake
this review has proved highly beneficial in enhancing cultural knowledge and
awareness of the Muslim Community overall, whilst also enabling the opportunity
to review the literature available, and practice in other areas. |
| Ref no |
2003/5 |
| Title |
Hepatitis
C: What can the UK learn from the Australian experience? |
| Author |
Chiara
HENDRY, Lead Nurse, Lambeth, Southwark & Lewisham Hepatitis Project, South
London & Maudsley NHS Trust |
| Abstract |
Australia’s response to
hepatitis C (HCV) includes the world’s first national strategy and the
development of non-governmental organisations (NGOs) providing community
representation. A partnership approach based on health promotion principles
ensures all relevant services and communities are formally involved in leading
the national response.
Using a community and
workforce development approach the State and Territory hepatitis C councils are
in a position to address quality of life issues for people with hepatitis C
from testing to treatment. Community participation is considered a key factor
in dealing with discrimination and stigmatisation that detrimentally affect the
quality of life of people with HCV.
The lessons learned from
Australia suggest that national and regional hepatitis C centres are required
to provide support and consistent education and resources across the UK. |
| Ref no |
2003/6 |
| Title |
School-based mental health services: A way forward?, Observational visits to
school-based mental services in Baltimore, Washington DC, Denver and New Haven |
| Author |
Sharon
LEIGHTON, Nurse Consultant in Child and Adolescent Mental Health, South
Staffordshire Healthcare NHS Trust |
| Abstract |
There has been a
dramatic increase in the psychosocial problems o children and adolescents in
Western societies over the last fifty years. In the UK at least 20% present
with a mental health problem, and of those, 10% will have a diagnosable mental
illness.
The aim of the study
tour was firstly, to visit the centre of excellence for School Based Mental
Health Services (SBMHS) in Baltimore and to meet with stakeholders and
providers of different SBMHS in Baltimore, Washington DC, Denver and New Haven
in order to explore the evolution of these programmes. Secondly, to enhance
my knowledge and understanding in order to aid the development of a local SBMHS
project. |
| Ref no |
2003/7 |
| Title |
Capacity planning in the
United Kingdom – Two into one (bed) has to go! |
| Author |
Ruth
GRIMLEY, Discharge Co-ordinator, Royal Preston Hospital
Margaret GOLDER, Capacity Manager, Royal Preston Hospital |
| Abstract |
Placing patients in the
right environment, with a specified time, has been the focus of national
action. The authors believe that management of patient flow is crucial to
achieving government targets. The authors also believe that the staff who
daily regulate this flow of patients through our hospitals is pivotal to the
overall success.
Three weeks were spent
in the United Kingdom investigating how Trusts were trying to prevent
inappropriate hospital admission, reduce time spent in emergency departments
and managing discharge arrangements. Findings demonstrated that the 10 Trusts
visited had at least three different ideas/innovations that could be
transferable to improve the way capacity is managed. |
| Ref no |
2003/8 |
| Title |
Living
donor transplantation: How does service provision in North Wales compare to
that in Toronto, Canada and Oslo, Norway? |
| Author |
Dawn
OLIVER, Transplant Specialist Nurse, Ysbyty Gwynedd Bangor |
| Abstract |
The aim of the study
was to discover if approaches to families and patients differ amongst the
countries of Canada and Norway, which could attribute to variations in donation
rates within the living donation programme. This was to be achieved through
collection, assessment and evaluation of the available literature/information
given to interested parties at each of the three centres concerned. Each
centre’s programme, from transplant work-up to post follow-up care was also
compared. Through these comparisons it was anticipated that recommendation to
change in practice would be made based on the observational findings, which
would ultimately lead to a more informed and accessible service and an
increased interest in living donation. |
| Ref no |
2003/9 |
| Title |
Rural
Health in the UK – Fact or Fiction? |
| Author |
Amanda
RUMLEY, Consultant Nurse, Rural Community Health (Accident Prevention) North &
South West Dorset PCT |
| Abstract |
A
comparative case study of rural health was conducted across the UK, New Zealand
and in Kentucky, USA, to establish whether rural health in the UK was fact or
fiction. In 2003, various placements were made in New Zealand and in
Kentucky, USA, to find out more about health care systems in other countries in
order to compare these with the UK. Visits were made to the North Island, New
Zealand to rural area in Hawkes Bay, Turangi and Wellington, Kentucky, USA, in
the Institute of Rural Health in Wales. A study of the views of healthcare
professionals living and working in one Primary Care Trust area was
simultaneously conducted to support the study.
The study gained insight
into how rural issues should be identified and recognised in the UK so that the
reality of rural health can in future become fact not fiction. |
| Ref no |
2003/10 |
| Title |
E-learning and Nurse Education. |
| Author |
Mike
FARRELL, Project Manager, Cumbria and Lancashire Workforce Development
Confederation |
| Abstract |
There is now significant
interest in the use of e-learning as a platform for supporting the education
and training of health professionals. Within the higher education sector the
use of learning technologies has been identified as a key priority, with the
development of networks and a considerable funding programme, established to
promote understanding of key issues of pedagogy, design and learner support in
order to ensure an effective e-learning experience.
The purpose of this
report is to share the findings of a travel scholarship tour, undertaken by the
author, to explore how a range of academic institutions within the UK and USA
have adopted e-learning to support the delivery of nursing and healthcare
education. |
| Ref no |
2003/11 |
| Title |
Menopausal experiences in women with learning disabilities |
| Author |
Diane
WILLIS, Staff Nurse/Research Assistant, Royal Victoria Hospital/Edinburgh
University |
| Abstract |
The aim of the research
was to investigate the menopausal experience and knowledge of the menopause in
women with learning disabilities (LD) and the sources of information and help
available to them.
Eighteen women with mild
to moderate LD (age 46-77) were approached, fifteen were interviewed, two women
refused and one was excluded. A multi-modal interviewing strategy was
employed using semi-structured interview schedule and a picture version of the
interview. The interviews were analysed using multi-staged narrative
analysis. The results also incorporated findings from a focus group where
questions overlapped for comparison |
| Ref no |
2003/12 |
| Title |
Observational visits to older people’s services in Sheffield and Baltimore
(USA), to examine the ways in which the Biographical Approach might be used to
enhance the person-centred care of older people in long-term settings. |
| Author |
Julie
BEVAN, The Fountains Care Centre. N E Lincolnshire |
| Abstract |
Studies into a more
individualised biographical approach and its relevance as a holistic nursing
intervention for older people in long-term settings have illustrated the need
to learn more about its relevance as a practice development approach. The
purpose of this report is to share the findings of a travel scholarship tour
undertaken by the author, to explore how the biographical approach might be
used to enhance the person-centred care of older people in long-term
settings. Two weeks were spent with researchers and practitioners at the
University of Sheffield, Sheffield Hallam University, and two weeks were spent
visiting the Institute for Johns Hopkins Nursing, Johns Hopkins Geriatric
Centre, Johns Hopkins Elder Plus and Bayview Medical Centre, Baltimore (USA). |
| Ref no |
2003/13 |
| Title |
A Travel
Scholarship to further enable an evaluation research study of the therapeutic
effectiveness of a Mindfulness Based Stress Reduction programme (MBSR) in women
with breast cancer |
| Author |
Caroline HOFFMAN, Therapies
Director, The Haven Trust |
| Abstract |
The scholar was awarded a
Travel Grant to the USA to further pursue training and seek expert advice
towards her doctoral research study evaluation the effectiveness of a
Mindfulness Based Stress Reduction programme (MBSR) in women with Stages 0-111
breast cancer attending The London Haven, a centre offering complementary and
supportive therapies for women affected by breast cancer.
Visits were made to The
Centre for Mindfulness, University of Massachusetts Medical Centre, Worcester,
Massachusetts and Mr Madonna Centre, Watsonville, California, USA. These
visits provided the opportunity to meet with key internationally renowned
clinicians, educationalists and researchers in the field of MBSR and
Mindfulness Cognitive Behavioural Therapy (MCBT) and to learn more about the
training requirements and course delivery requirements for teachers of MBSR.
In addition to this, the Scholar was able to participate in the international
gold standard of training for the teaching MBSR to patients and also attend the
second annual international conference in MBSR. |
| Ref no |
2003/14 |
| Title |
Is dual
diagnosis a western cultural-bound syndrome? An investigation of co-morbid
substance use disorders and mental health problems in Northern India |
| Author |
Peter A PHILLIPS, Honorary
Research Fellow, Department of Mental Health Sciences, University College
London |
| Abstract |
The study aimed to gain
an insight into the nature, extent and correlates of substance use disorders
amongst mental health service users in northern India. Staff
reports/interviews were used in order to understand the cultural context and
report subjective reasons for substance use (especially bhang use), and their
relationship to psychotic systems. |
| Ref no |
2003/15 |
| Title |
A study
of community nurses’ attitudes towards the management of nausea and vomiting in
the person with cancer. |
| Author |
Isabel DOSSER, Palliative
Nurse Specialist. St Johns Macmillan Centre. West Lothian |
| Abstract |
Cancer related nausea and
vomiting affects 40-70% of people with advanced cancer and failure to relieve
symptoms can seriously diminish their quality of life. Difficult symptoms
require skilled assessment in order to give the appropriate treatment.
Attitudes to cancer may create a barrier to communication between the patient
and the professional leading to neglect of symptoms such as nausea and
vomiting.
This qualitative study
was designed to gain insight into the attitudes of community nurses with
specific reference to individuals with cancer being cared for in the community
who have cancer related nausea and vomiting. A description, qualitative
approach was adopted utilising semi-structured interviews. |
| Ref no |
2003/16 |
| Title |
The
Ethics of Trust Telling in Healthcare |
| Author |
Heather DARNELL, Nurse Adviser, Swansea NHS Trust |
| Abstract |
One of the most common
dilemmas faced by healthcare professions is whether or not to fully disclose
all details of diagnosis, prognosis and treatment options to a patient. This
is especially difficult when a diagnosis such as cancer has been made, as many
believe that full disclosure of the fats may cause added distress and
anxiety. It is in the very nature of members of the caring profession to want
to shield the patient from such grief. Although placed in this situation the
healthcare team is often faced with the dilemma of what should be done. They
owe a duty of care to their patients and are, therefore obliged to always take
the individuals best interests into account. However, is it sufficient to
withhold information based on the assumption that patients are unable to
‘stomach’ bad news?
This paper aims to
explore the ethics of truth telling in the context of healthcare. |
| Ref no |
2003/17 |
| Title |
An
exploration of women asylum seekers or refugees experience of midwifery care. |
| Author |
Lesley
BRISCOE, Midwifery Research Co-ordinator, Liverpool Women’s Hospital |
| Abstract |
Women may be more seriously
affected by displacement than men leading to subsequent isolation, poverty,
hostility and racism (United Nations Development Programme 1999). Recent
evidence (McClesh 2002) has highlighted the multiple problems that women who
are asylum seekers and refugees may face. Issues such as loneliness, sadness,
anxiety, poor housing, dispersion, interpreter support and poverty emerged from
the study. To compound issues for women who are asylum seekers or refugees,
evidence indicates that socially disadvantaged women are 2 times more likely to
die that women from social classes 1 and 2, women from ethnic groups other than
white are twice as likely to die than women in the white group, and a large
number of women who died spoke little English (Why Mothers Die 1997-1999).
During the conception of
this study local data was either inaccurate or non-existent and care for the
women in the study hospital lacked co-ordination. |
| Ref no |
2003/18 |
| Title |
The
development and utilisation of telehealth in prison health care in America. |
| Author |
Sarah
LEONARD, Research Fellow School of Nursing, University of Southampton |
| Abstract |
This report will begin
by outlining what telephealth is and will look at some of the history which
surrounds the development of these services within healthcare. As the study
is focused around the adoption and use of telehealth within prisons it provides
a review of the prison system in the UK and outlines the recent reforms and
reviews surrounding prison healthcare.
The final part of this
report focuses on the study tour and the findings from visits to the prison
systems in the states of Texas, Kansas and California in the United States of
America and Brisbane in Australia. This report concludes with a summary of
the study findings and implications and recommendations for the use and
possible adoption of telehealth into the UK prison health services. |
| Ref no |
2003/19 |
| Title |
Cultural
Competence in Health Visiting Practice – A base line survey |
| Author |
Angela
KNIGHT JACKSON |
| Abstract |
Current health policy has recognised the need to address the inequality of
health status experienced by black and minority ethnic communities. The
Government is devolving and delegating responsibility for the provision of
services to health professionals working a Primary Care Trust. Health
Visitors have been identified as having a pivotal role in leading public health
practice and agreeing local health plans.
This quantitative
research study draws on the positivism paradigm to explore health visitors
beliefs, knowledge and practice in cultural competence |
| Ref no |
2003/20 |
| Title |
What
impact does the mental health awareness training have in practice? |
| Author |
Lisa
MACLEAN, Nurse Consultant HMP Woodhill |
| Abstract |
This training was
identified by previous research undertaken to ascertain what skills and
training Prison Officers in particular, and other prison personnel in general
were required to cope with the ever increasing demands of mental illness within
their prisons (Paton &Jenkins 2002, Reed & Lyne 1997, Singleton, Meltzer et al
1998)
Training and support for
all the prison staff, particularly officers working in the healthcare centres
and on the main wings is seen as a vital step forward in addressing some of the
existing shortcomings. The training was aimed at enabling staff to:
 | Identify prisoners at
risk of developing mental health problems |
 | Identify prisoners
experiencing mental health problems |
 | Know how to respond
appropriately to the needs of the prisoners. |
|
| Ref no |
2003/21 |
| Title |
Education
for Nursing Staff who provide care for people with advanced Huntingdon’s
Disease |
| Author |
Stephen SMITH, Lecturer, Community Nursing University of East Anglia School of
Nursing |
| Abstract |
The aim of this
research was to establish the educational needs of nurses and care workers who
provide nursing for people who have advanced Huntingdon’s Disease, how these
needs can be met, and to what extent specialised staff education can improve
quality of life for this patient group. A secondary aim was to establish the
implications of this research with regard to education for nurses and care
workers involved in nursing people with any advanced degenerative disease. |
| Ref no |
2003/22 |
| Title |
Qualitative study to generate insight and explore patients’ perspective of
health-related quality of life in chronic heart failure |
| Author |
Karen
DUNDERDALE, Cardiac Specialist Nurse Scunthorpe General Hospital |
| Abstract |
The aims of treatment
in chronic heart failure (CHF) are to reduce symptoms, improve function and
prolong life. The physical symptoms of CHF limit daily activities, which
becomes a major concern to patients. Whilst health care professionals are
concerned with changes in objective physical measures, patients are
understandably more concerned on the impact of these symptoms on physical
function and social roles. Health related quality of life (HRQL) measures are
used to describe what the patient has experienced as a result of healthcare,
unlike Quality of Life measures, which arise from a professional’s
perspective. Currently there is no patient centred HRQL measure in CHF. The
aim of this study therefore was to identify how patient’s beliefs about CHF
affect their HRQL and to identify themes for inclusion in a patient centred
quality of life measure |
| Ref no |
2003/23 |
| Title |
Application of a Stepped Care Model for Primary Mental Health Care in
Manchester |
| Author |
Sarah
KENDAL, Clinical Lead for Mental Health North Manchester PCT |
| Abstract |
Thanks to a travel grant
from the Florence Nightingale Foundation, the service manager visited Center
for Health Studies, a research group in Seattle, USA, that is based within a
healthcare organisation known as Group Health Co-operative. The three-week
visit included tours of mental health facilities in other organisations and
extensive interviews with a number of key innovators in the organisation and
delivery of primary mental health care.
Many innovations in
primary mental health care were observed here. Three specific concepts
appeared to be particularly applicable to services in Manchester: a model for
chronic disease management; enhanced depression care; and stepped care. They
are described in this report with a view to their applicability in local
contexts. |
| Ref no |
2003/24 |
| Title |
Implementation of Prescribing in Mental Health Nursing |
| Author |
Adrian
JONES, Nurse Consultant N E Wales NHS Trust |
| Abstract |
Supplementary nurse
prescribing in mental health nursing holds the potential to deliver huge
benefits for patients and the wider health care system. Changes to the
legislation in England and Wales have already taken place and training has
started in Wales in 2004. Developments within the USA, which has practised a
more extended form of prescriptive authority, will help inform the debate
within Wales.
The findings of this
report indicate that in order for nurses in the USA to have prescriptive
authority, they are required to undergo an extensive level of training.
However, once this has been achieved, nurses have unlimited prescriptive
authority within their scope of practice. Areas of prescribing to be reported
here include private practice, community teams and hospital care and outpatient
settings. Implementation of independence nurse prescribing is moderated
however by the structure of health care in the USA and factors to be considered
include recognition by insurance companies, power of the medical profession,
availability of medical staff within the areas, and reduced costs in hiring
independent nurse practitioners versus medical staff. |
| Ref no |
2003/25 |
| Title |
Learning
to promote learning |
| Author |
Isabel
Fitzsimmons LENNOX, Nurse Rotation Scheme Leader The Maudsley Hospital, London |
| Abstract |
The aim of the study was to
assess the learning styles of nurses working within mental health and, school
children in the same geographical area in four difference regions of the
African subcontinent.
A significant proportion
of mental health nursing students working within South London and Maudsley NHS
Trust are from the African subcontinent. There has been little UK based work
on possible cultural differences in learning styles of this group in Britain.
American research seems to show that there are differences, possibly mediated
by the learning context.
The aim was to
qualitatively and quantitatively survey learning styles and the factors
influencing them across a range of learners (school pupils, nursing students,
health care assistants and nurses) in 4 different regions (Ghana, Uganda, South
Africa and Nigeria).
Learning styles and the
learning environment in Africa are significantly difference from the western
environment and we need to be aware of this to facilitate the learning of
students from the African subcontinent. This has implications at both
graduate and postgraduate level. Specific recommendations are made as to how
this may be done. |
| Ref no |
2003/26 |
| Title |
An
evaluation of community children’s nursing in part of New Zealand |
| Author |
Rachel
PATON, Community Children’s Nurse Royal Berkshire and Battle Hospitals NHS
Trust |
| Abstract |
Community Children’s
Nursing teams (CCNT) were set up to care for sick children in their own
homes. More children are surviving with complex technical and social needs
(Cramp et al 2003).
The aims of this study
were (i) to identify the organisational structure of community services for
children in NZ; (ii) to evaluate the professional support and care of children
with complex health needs following discharge from hospital; and (iii) to
explore the extent of equitable distribution of services to child and family
across rural and urban areas.
In order to fulfil these
aims it was decided to conduct an audit of service delivery assessing the use
of multidisciplinary teams, outreach teams and hospice care. The extent of
good practice in the provision of paediatric care would be examined and this
information used to influence practice in UK if appropriate. |
| Ref no |
2003/27 |
| Title |
Enhancing
the Palliative Care Approach in oncology nursing: The impact of introducing an
assessment tool to structure nurses’ assessments of patients receiving
palliative care. |
| Author |
Catherine WILSON, Nurse Researcher, Mount Vernon Hospital |
| Abstract |
This report outlines
the progress made during the second of a three-year full time course studying
for a PhD in nursing at St Bartholomew School of Nursing and Midwifery, City
University London. The research is concerned with oncology nurses’
assessments of patients with advanced cancer receiving outpatient palliative
chemotherapy. The study is exploring the impact of introducing a quality of
life tool to structure nurses’ assessments, and is based on a realist
evaluation framework using a ‘before and after’ design and a multiple case
study approach. Data collection methods include non-participant observation
of nurses’ practice; tape recording of nurse-patients assessments; and
interpretative interviews with patients and nurses |
| Ref no |
2003/28 |
| Title |
Does it
take more than just training to persuade nurses to routinely use safe patient
handling techniques |
| Author |
Ron
MAUL, Palliative Care Staff Nurse, St Michael’s Hospice |
| Abstract |
This study is a
literature review of evidence relating to interventions in the healthcare
sphere of patient handling, to test the hypothesis that taught safe handling
practices are not being universally applied, and try to identify antecedent
causes. From the author’s background in industrial health and safety and
healthcare, the further hypothesis that this failure could in part be due to
inappropriate risk assessment with poor supervision and monitoring of practice
is also tested against the available evidence. |
| Ref no |
2003/29 |
| Title |
Diagnosis
of Occupational Asthma: An International Comparison |
| Author |
Alice
HOLE, Clinical Nurse Specialist Royal Brompton Hospital |
| Abstract |
This is a report of
visits to six centres in five different countries which specialise in the
investigation of occupational asthma. The process of investigation is
described and the differences between the centres also discussed. The role of
the clinical nurse specialist in one of those centres is also discussed; the
changes made within this centre as a consequence of the travel scholarship are
outlined. |
| Ref no |
2003/30 |
| Title |
All my
headaches rolled into one: Patients’ perceptions of pain management following
subarachnoid haemorrhage |
| Author |
Andy
COLE, Practitioner/Health Lecturer University of Nottingham |
| Abstract |
Headaches are a common
feature of subarachnoid haemorrhage but poor pain management practices and the
persistence of traditional beliefs surrounding the side effect profile of
strong opiods results in inadequate pain relief in hospital. Existing studies
neglect to address the analgesic requirements and pain experiences of patients
awaiting treatment of subarachnoid haemorrhage.
This paper reports on a
study aiming to explore the nature and significance of pain for patients with
SAH and to identify effective pain management strategies. |
| Ref no |
2003/31 |
| Title |
Design
and evaluation of a Touch Screen Computer System to collect quality of life
data in Rheumatology Clinic |
| Author |
Miranda GREENWOOD,
Rheumatology Research Nurse, Whipps Cross Hospital |
| Abstract |
This study set out to
assess the feasibility of collecting quality of life data by touch screen in
the rheumatology clinic.
A touch screen version
of the RAQol rheumatoid arthritis-related quality of life questionnaire was
designed by Microsoft Access. This included additional questions to identify
the more important quality of life issues for the individual patient. Its
reliability and ease of use was tested by 80 patients with Rheumatoid Arthritis
(RA) in a clinical setting. All participants also completed a paper and
pencil RAQol questionnaire in either an equivalent extended form with the
additional questions (n=40) or in the original form without (N=40). Finally
all patients completed EuroQol VAS (patient’s overall assessment of health
state on a visual analogue scale and questions on ease of use, their methods of
preference and past experience of computers. |
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